STORIES OF MOTHERS WITH INTELLECTUAL DISABILITY CHILDREN IN WEST SUMATERA, INDONESIA
Abstract
Background: Children with intellectual disability are rejected not only by other individuals around them but also by their own family. Even though they need support from the mother to achieve accurate conformity. The form of mother social support can be in the form of emotional support, appreciation, instrumental and informative. However, the parents of Children with intellectual disability often refuse the presence of their children. The purpose of this study was to obtain qualitative data on the experience of mothers who have intellectually disabled children
Methods: This study is a qualitative research conducted by interview using the semi-structured interview method. The participants were selected by using purposive sampling technique. The data were qualitative analyzed by employing Collaizi model. The participants in this study were 6 mothers who have children with intellectual disability
Results: Participants have a positive perception about the educational needs of children with intellectual disability. However, due to financial issues, participants do not provide education for their intellectually disabled children. They mentioned that if their intellectually disabled children were properly, they would be able to take care of themselves and would no longer depend on others.
Conclusion: In this study, the researchers found five themes of mothers' stories with intellectual disability child in West Sumatera, Indonesia, including (1) their unawareness of their intellectually disabled children condition; (2) disappointment as the initial response knowing their children status; (3) anxiety and worry about their children future; (4) financial issues as a factor in obstructing education, and (5) religious worship as a source of strength. The results of this study can be used in nursing practice so that families can maintain the sources of strength to accept the fact that they have children with intellectual disability
and that education is very important for children with intellectual disability.
Keywords: Intellectual Disability, Education, Mothers' Experience, Mothers' stories
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References
Lisnayanti NW, Sulistiowati NMD, Surasta IW. Hubungan tingkat harga diri (self-esteem) dengan tingkat ansietas orang tua dalam merawat anak tunagrahita di SDLB C Negeri Denpasar.'(The relationship between the level of self-esteem and the level of parent anxiety in caring for mentally retarded children in SDLB C Denpasar)'. Coping Ners Journal. 2015; 3(2): 15-21.
Apriyanto, N. Seluk-beluk tunagrahita dan strategi pembelajarannya.'(Intricacies of mental retardation and learning strategies)'. Yogyakarta: Jayalitera;2012
Rukmana LP,Hendriani W. Peran dukungan keluarga dan konsep diri terhadap peningkatan keterampilan sosial anak tunarungu di Sekolah Inklusif. ‘(The role of family support and self-concept towards improving social skills of deaf children in Inclusive Schools)'. Philanthrophy Journal of Psychology.2018;2(1): 37.54.
Sari O, Santy WH. Hubungan dukungan keluarga dengan tingkat kemandirian personal hygiene anak tunagrahita di SLB Tunas Mulya Kelurahan Sememi Kecamatan Benowo.'(Relationship between family support and the level of personal hygiene of mentally retarded children in SLB Tunas Mulya, Sememi Subdistrict, Benowo District)'. Jurnal Ilmiah Kesehatan. 2017; 10(2): 164-171.
Marlinda E. Pengalaman ibu dalam merawat anak dengan kebutuhan khusus: autis di Banjarbaru Kalimantan Selatan.'(Mother's experience in caring for children with special needs: autism in Banjarbaru South Kalimantan)'. Tesis; Fakultas Ilmu Keperawatan, Universitas Indonesia; 2011.
Marliyana,Marliyana. Pengalaman Ibu Merawat Anak dengan Tunagrahita di Bandar Lampung. '(Mothers experience Caring for Children with Mentally Retarded in Bandar Lampung)'. Jurnal Kesehatan. 2017;8(1): 50-57
Badan Statistik Sumbar (BPS). Laporan statistik kesehatan Sumatera Barat. ‘(Report on West Sumatra health statistics)',2017.
Polit,D.F&Hungler,C.T. Nursing research: principle and method. 7th ed. Philadelphia: Lippincott Williams & Wilkins; 2004.
Amelia, D. Pengalaman survivor penderita kanker payudara stadium lanjut. '(Experience survivor of advanced breast cancer patients)'. Tesis; Fakultas Ilmu Keperawatan. Unpad;2015
Jewll, TC, Downing, D, & McFarlane, WR. Partnering with families: multiple family group psychoeducation for schizophrenia. NCBI. 2009; 65(8): 868 – 878.
Wulandari, S,Ranimpi Y & Dary. Family function on the family who has children with intellectual disability in Salatiga. Jurnal gizi dan kesehatan. 2018;10(23):1 – 10.
Hendriyani W, Handarayati R, Sakti TM. Penerimaan keluarga terhadap individuyang mengalami keterbelakangan mental. '(Family acceptance of individuals who are mentally retarded)'. Jurnal Insan. 2006; 8(2): 100 – 112.
Tsai & Wang. The relationship between caregiver's strain and social support among mothers with intellectually disabled children. Journal of clinical nursing. 2009; 18: 539 – 548.
Sapuan,I. Hendarsih, S. Hubungan tingkat religiusitas dengan koping ibu yang memiliki anak retardasi mental di SLB Negeri 2 Yogyakarta. '(Relationship between the level of religiosity and coping of mothers who have mentally retarded children in Yogyakarta State SLB 2)'. Skripsi. STIKes Aisyah Yokyakarta.2014
Moeschler JB, Shevell M. Comprehensive Evaluation of the Child With Intellectual Disability or Global Developmental Delays. Pediatrics. 2014; 134(3):e903. [PubMed: 25157020]
Marrus, MD,Hall, LM. Intellectual Disability and Language Disorder. Child Adolesc Psychiatr Clin N Am. 2017; 26(3): 539–554.
Bitsika V, Sharpley CF, Bell R. The buffering effect of resilience upon stress, anxiety and depression in parents of a child with an Autism Spectrum Disorder. Journal of Developmental and Physical Disabilities. 2013;25(5):533-543.
Griffith, G., & Hastings, R. ‘He's hard work, but he's worth it'. The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research. Journal of Applied Research in Intellectual Disabilities, 2014; 27, 401–419
Blacher J, Neece CL, Paczkowski E. Families and intellectual disability. Curr Opin Psychiatry. 2005;18(5):507-13.
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